"An invisible red thread connects those who are destined to meet, regardless of time, place,
or circumstance. The thread may stretch or tangle, but will never break."
--An ancient Chinese belief




Important dates:

Tuesday, June 03, 2008

Update............. Children's Hospital

Well, today, Matthew had his 6 month check-up at Children's Hospital. We prayed that there would be NO MORE SURGERY anytime soon. So far, so good. Except for one disappointing thing (at least to mom). We were told by audiology that Matthew is losing more of his lower/mid frequencies in his left ear. (Both actually, but more so in his left ear.) Audiology informed ENT and then we went from audiology to ENT. Well, Matthew has to have an intricate CAT scan done to figure out if his ears are ok. (Definition = Meaning, his ears/ear canals are not deformed in any way or anything is "wrong" in there.)

When will the CAT scan be done? Have no clue! They will get back with us because Matthew has to be "put under" in order to get what they need. Can you imagine a 3 year old holding still for up to 30 minutes???? Matthew is good, but not THAT good. He did really well today at Children's. ALOT of waiting, they were sooooooooooooo backed up!!! I've never seen so many children waiting who were CL/CP, burns, disfigured, etc. God knows my heart went out to every single one of them.

Dental checkup was good. Matthew has one less tooth.......DUH! It was taken out last surgery, February 1st. Other than that? That went well.

You know about audiology already. Speech went well. They are impressed that Matthew is in speech already and is learning so well and so fast!!!

ENT, you know about that too. OH yeah, they pulled 2 wads of "gunk" (wax) from Matthew's ears and the tool that they used Matthew bearly felt anything whatsoever! It was great. No screaming! No fighting! Everyone in ENT was surprised at Matthew. They love him! Everyone said how "cute" he is! (OF COURSE!);o)

After that? The plastic/reconstructive surgery. We saw Dr. Byojian? (spelling). Matthew was SO VERY, VERY, VERY disappointed. He asked the doctor where Dr. Murthy was! Where's Murty? Momma? Where's Murty!? hehehehehhee....*s* Dr. Ananth Murthy and Matthew have such a good relationship! Matthew loves him!!!!! He looks for him every single time we go to Children's!!! (Mom and Dad like him too.):o)

Then came Genetics............nice lady. Asked us as many questions as we couldn't answer! LOL (because we don't know alot about Matthew's background/family once he was born) We were told that he has a 3 to 5 percent chance of giving his children a cleft palate/cleft lip. Not bad, but still.........it was nice to know about that.

Psychology saw us. Weird little man. Asked weird questions. Then found out that Crazy Daddy snores and that was the end of poor Matthew!!!! Can you say, HUH?!?!?! What in the world?!?! Anyway, I was glad to be over with him! Just weird.

After all that............all my mommy brain could comprehend was that Matthew was losing his hearing! Yes, we don't know if it's permanant. Yes, we don't know if it's conductive. Yes, we don't know if it's a thing he was "born" with, or just happening. We don't know if he will need a hearing aid. We don't know if a hearing aid will work. We don't know if he'll need surgery. We have no idea! That's the scary part at the moment.

He hears me, Momma Kooky, just fine. Crazy Daddy? Not so fine. Daddy has a lower voice than Mom. So, what does this mean? We wait. Wait for the scan. See what we are dealing with and proceed from there.

God knows, please, please pray for Matthew! I just don't want him to lose his hearing! He's had 3 audiology tests performed on him and all of them are worse and worse. *not good* His right ear is ok. It's his left that is the problem.

Until we know, all I can say is stay tuned and please keep him in your prayers. Please.

Momma Kooky

2 comments:

Krista said...

Sorry to hear about the hearing issues. I am hoping you can get further information and that it can be resolved soon. We've only seen Dr. B (not even going to try to spell it) and never seen Dr. Murthy. He sounds really nice, though and I hope we get to meet him sometime. I'd love to email/talk about your experiences with Children's team sometime. My email addy is in my profile. :)

Anonymous said...

Hi Kit. Sure. We can email. The Craniofacial team at Children's is WONDERFUL! I wouldn't trade them for the world!!!!


Momma Kooky aka Kristen